The following week we headed back to Sick Kids to discuss the cause of Nolan’s blindness and a treatment plan, if anything at all. We spoke with a genetics counsellor who informed us both his retinas were detached and three possible conditions were the cause: Bilateral PRFV, and two genetic conditions, FEVR and Norrie Disease (the worst among the three). We went through with genetic testing not knowing what to think, let alone what to ask. Our world was turned upside down, as …

So, there we were sitting at Sick Kids eye clinic, waiting to see the doctor with racing minds. During the initial exam the doctor was apprehensive to say too much, the silence could have been sliced with a knife at that point. Ultrasounds and hours later, we were slapped with the excruciating news from the oncologist, “your son is visually impaired in both eyes”. His carefree, unempathetic demeaner was less than desirable and the limited answers we received saturated the …

Fast forward to Nolan at 4 weeks old, I just couldn’t shake this awful feeling that something wasn’t right. There was no true sign that lead me to this conclusion, I guess just mother’s intuition. It was time for our tummy time and face to face interaction when I noticed Nolan wasn’t quite following toys or even myself for that matter. I knew this wasn’t out of the norm as he was still quite young, but I had to follow my gut. I researched and saw to take pictures with a flash …

Our little man has finally graced us with his presence today at 4:41pm. Weighing in at 7lbs 13 oz, much smaller than his big brother. Welcome to our family Nolan Huxley Briggs! We can’t wait for you to meet the best big brother out there. We’ve all been anxiously waiting for you. So, so blessed!